Showing posts with label ehlers danlos syndrome. Show all posts
Showing posts with label ehlers danlos syndrome. Show all posts

Wednesday, 19 October 2016

Charity auction for Canine Partners

As some of you may know I have a genetic condition called Ehlers Danlos Syndrome which causes hypermobile joints, pain, fatigue and a whole heap of other symptoms.  I have become quite disabled by this condition to the point where I need assistance to do many tasks that most people take for granted.

Last year I came across a charity called Canine Partners.  They provide disabled people with trained assistance dogs.  The dogs are absolutely amazing!  They can fetch the post, open doors, even empty the washing machine.  I spoke to my family about it and we agreed that I should apply for a dog.  I went through the assessment process and I have been placed on the waiting list.

It costs £20,000 to train and support a Canine Partner through their working life and I wanted to give something back.  I wasn't sure how I could fund raise, I'm too sick to run a marathon or jump out of a plane so I looked at what I can do best.  Crochet!


I made this blanket in purple (to match the Canine Partners logo) and cream, I chose a chunky acrylic yarn which is very soft, warm and easy to care for.  It measure 48" square and it would be great for snuggling up in your favourite arm chair on a cold winters evening.  


I've listed the blanket on eBay with 100% of the proceeds going to Canine Partners.  If you want to buy a great blanket and support and even greater cause then please bid.  The auction ends at 6pm on Monday 24th October.




If you'd like to make a donation or learn more about Canine Partners then please visit their website:

Thank you!

Friday, 12 August 2016

Meet Roberta, my spinning saviour!

A few years ago a good friend of mine, Babylonglegs, got me into spinning.  I tried out her Louet S10 and loved it so I bought my own Louet S15.  It was so therapeutic turning the fluffy clouds of wool fibre into squishy multicoloured yarns but one thing was holding me back - pain.  I didn't know it at the time but I had Ehlers Danlos Syndrome, a connective tissue disorder which causes hypermobile joints and pain (along with lots of other unpleasant symptoms).

I found it difficult treadling with my right knee and the pain almost made me quit spinning but I don't give up that easily.  I traded my S15 in for a very pretty Louet S51 DT, hoping that using both legs on the double treadle would ease my pain.  Sadly for me it didn't and my lovely spinning wheel and my stash of fluffy fibre have sat unloved for the past few years.

I really missed spinning and I was determined to find a way to continue my hobby.  I researched electric spinning wheels (no treadling required!) but they were all very expensive, ranging from £430 for an Ashford E Spinner to over £1000 for a Hansen Mini Spinner.  They were all out of my price range so I scoured buy and sell groups and checked eBay every day for months until this one electronic wheel appeared.  An Ertoel Roberta.

The seller didn't seem to know much about spinning, the wheel looked in really bad shape but from the photographs it looked like all the important bits were there.  The starting bid was £20, which is incredibly low considering they sell new in America for $1,095.  I watched the auction until the very last few minutes and I put in my bid.  I didn't think I was going to win, I was convinced someone was going to outbid me and I prepared myself for disappointment but when the countdown ended I was the highest bidder at £129.77!

I did my happy dance and then patiently waited for my parcel to arrive.  And this is what I got.

After doing some research I discovered she's about 30 years old and made in Australia.  Cosmetically she needs a little TLC.  The lacquer is peeling off the woodwork and the orifice hook holder is broken but there is nothing that can't be fixed.

The flyer is a little rusty and slightly bent so that will need replacing with a modern jumbo flyer, one of the bobbins rattles a little and the leather bearings have seen better days but everything else is in good working order.

I'm back spinning and I couldn't be happier :)